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[Editorial] Genome editing: proceed with caution

Philosophically interrogating peoples’ motives and aims in matters of procreation leads to controversy and emotionally charged debates. Introducing ideas about genome editing and its implications broadens discussions about human reproduction from fertility clinics and prospective parents to organisations and governments worldwide. 40 years after the first baby was born by in-vitro fertilisation, the game changing technique of CRISPR-Cas9, which enables precise alterations of DNA sequences in living cells, has once again sparked heated argument about the use of interventions selecting for traits and against diseases of human beings.

[Editorial] Tackling inequalities to improve wellbeing in New Zealand

In May, 2018, Jacinda Ardern’s New Zealand Government announced their first budget and, in a world first, extended the measures of success to include the nation’s wellbeing alongside financial measures. Providing a baseline on which success of the government’s future wellness budgets can be measured, the Health and Independence Report 2017, published by the New Zealand Ministry of Health on July 16, outlines the current state of the nation’s health. The report references Te Whare Tapa Whā, a Māori philosophy towards health based on a holistic model of health and wellbeing, and acknowledges the role of social determinants and environmental factors to sustain both good and poor health.

[Perspectives] Taking to tobacco

We live in an era of national No Smoking Days. With reminders to give up tobacco as regular events, it is worth thinking back 400 years, to when Europeans were starting to smoke for the first time. No other intoxicant has done more to shape and define the modern world than “the holy herb”, as its early proponents tended to call it. Without Europeans taking to tobacco, it is difficult to see how the English colonies in Virginia would have first survived and then flourished; whether African slavery would have become the bulwark of trans-Atlantic economies; how western governments would have garnered the revenues they have; and whether people around the globe would socialise, relax, pose—and of course die—the way that they do.

Two decades of community service

Family Doctor Week
Australian Capital Territory – Dr Rashmi Sharma OAM

About 20 years ago, Dr Rashmi Sharma opened a medical practice in the southern suburbs of Canberra with her sister Divya.

Today, the Isabella Plains Medical Centre is a thriving practice and Dr Sharma is a recipient of the Order of Australia Medal.

She is a Clinical Associate Professor at the Australian National University’s Medical School, the head of education for GP Synergy, sits on numerous Government committees and, as a Practice Principal at Isabella Plains Medical Centre, regards herself as a portfolio GP.

“I think the joy of general practice is the privilege of joining with some of your patients through their lives with them,” Dr Sharma said.

“Of the all the caps I wear, general practice is the one thing I enjoy the most. Sitting in a little consultation room with a patient is very satisfying. It keeps me grounded

“I have been in this practice about two decades – I started it with my sister who is also a GP. I have seen patients grow up and start families.

“I bumped into a patient on the street the other day and I hadn’t seen them for some years, yet I remembered the condition of their child. We have patients for life.

“And we are not just looking after patients, we are looking after the community. We have been looking after the southern parts of Canberra for two decades. We have second and third generation patients.”

As the head of education at for GP Synergy, Dr Sharma has had to spend considerable periods in New South Wales, looking after about 200 registrars the provider is training.

In recent times, she relocated to Northern New South Wales where she grew up. But that has not stopped her work in Canberra.

“I couldn’t give up my practice in Canberra. I only do general practice in Canberra,” she said.

“So, I kind of fly-in fly-out, but so much of my medical work is in Canberra.

“Some days I might see 30 patients in the clinic. We have a lot of nurses too who do a great job. We started this clinic and went from four doctors to 17 doctors, and from no nurses to seven nurses. We feel very proud of what we have been able to do for this community.”

CHRIS JOHNSON

 

Private health insurance reforms – moving ahead

In October last year, Health Minister Greg Hunt announced that the Government would embark on a package of reforms aimed at making private health insurance simpler and more affordable for Australians.  

Private health insurance is one of the most complex forms of insurance and the current complexity of product offerings has led many consumers to report that they do not understand what they are covered for. These reforms aim to simplify private health insurance hospital cover by creating easily understood tiers of cover. There will be four tiers of hospital products Gold, Silver, Bronze and Basic. These new private health insurance products will take effect from April 1, 2019.

When announced, the AMA President welcomed the reforms as a long overdue opportunity to bring much-needed transparency, clarity, and affordability to the private health sector. However, the AMA also noted that the challenge ahead was to clearly define and describe the insurance products on offer – to deliver meaningful and consistent levels of cover in each category.

The reform package has built on the work of the Private Health Ministerial Advisory Committee, which was established to examine all aspects of private health insurance and provide government with advice on reforms. This committee met extensively and set up several working groups to look at specific issues. The AMA has been represented continuously throughout this process. An ad hoc group of members has been working to provide the AMA representatives with advice and support.

As part of this process the AMA recently provided a submission to the Health Department concerning the draft standard clinical definitions that support the new private health insurance categories. More recently, the Government has introduced the legislation required to support the package of reforms into parliament. The legislative package has now been referred to a Senate Committee Inquiry, which is expected to report in mid-August.

On Sunday July 15, the Minister announced the Gold, Silver and Bronze categories again without much further information. However, the next day the Health Department released the draft rules (or subordinate legislation/regulations) that will support the package of reforms. 

Under these new rules, the proposed Gold, Silver and Bronze policies will not contain restrictions or carve outs for included clinical treatments (except hospital psychiatric care, rehabilitation and palliative care). According to Government modelling currently about 25 per cent of people with private hospital insurance purchase cover have restrictions applied to a clinical category other than hospital psychiatric care, rehabilitation and palliative care. In the new system, only the new Basic category can have restrictions (outside hospital psychiatric care, rehabilitation and palliative care), and even then, it must be clearly marked as having a restriction.

The AMA Secretariat is now working with the other Colleges, Associations and Societies to provide the Government with comprehensive advice on the proposed rules, including the critical issue of clinical definitions and MBS item coverage under these definitions.

Extract of a letter to members from AMA President Dr Tony Bartone.

WHO praises Greece for giving asylum seekers universal health coverage

The Greek Government has taken steps to address the health of 60,000 migrants and refugees currently living in the country, by granting access to primary health care (PHC) services, coordinated for migrants and Greek citizens alike by the Ministry of Health.

The World Health Organisation has congratulated Greece on the effort.

WHO Director General Dr Tedros Adhanom Ghebreyesus and WHO’s Regional Director for Europe Dr Zsuzsanna Jakab, visited Greece in June at the invitation of the country’s Prime Minister Alexis Tsipras, to inspect the implementation of a WHO-endorsed plan for refugee and migrant health.

WHO’s Public Health Aspects of Migration in Europe (PHAME) program works to strengthen the capacity of countries’ public health services to deal with large influxes of migrants.

Speaking at a recent regional WHO meeting, Prime Minister Tsipras said the issue of access to health services was of critical importance because “protecting human dignity and health is not a privilege or a luxury”.

WHO has been working with Greece on a European Union-funded project to ensure that the reform plan follows WHO policy recommendations.

Dr Tedros congratulated Mr Tsipras for his commitment to universal health coverage, and to ensuring that all residents of Greece can access the health services they need, when and where they need them, without facing financial hardship.

“The investments Greece is making will generate a return not only in terms of better health, but also in terms of poverty reduction, job creation, inclusive economic growth and health security,” Dr Tedros said.

This approach means migrants can access medical support, as well as cultural mediation to ensure that services are appropriate. They are also guided in navigating the health system so that they can, for example, receive the medication they need to manage chronic conditions. Greece has invested in PHC, despite experiencing a severe financial crisis.

For the first time Greece has developed unified PHC services based on community PHC units. Known as TOMYs, these units are staffed with multidisciplinary teams of general practitioners, paediatricians, nurses, health visitors, social workers and administrative staff. TOMYs work in collaboration with already existing ambulatory care units, health centres that provide specialised, diagnostic and dental health-care services.

The first TOMY opened in Thessaloniki (Evosmos) in December 2017, and currently there are 94 units in operation. Each unit has a capacity to serve approximately 10,000 people, and they are likely to reach this capacity within a year.

Dr Jakab said: “Standing shoulder to shoulder with the Greek Ministry of Health, we have made significant efforts that will continue to contribute to improving the health of the Greek people, including the most vulnerable.”

WHO suggested to Greece that the TOMY teams map the health needs of the communities they serve.

Dr Tedros and Dr Jakab’s visit to Greece coincided with the official launch of the new WHO Country Office in Greece, which will facilitate collaboration with the Ministry of Health and other stakeholders on national health priorities, as well as supporting multicountry cooperation programs. It is the 149th WHO country office worldwide, and the 30th in the European Region.

Dr Andreas Xanthos, Greece’s Health Minister, said that the establishment of the WHO Country Office in Greece significantly strengthens the country’s efforts towards universal health coverage and a sustainable and effective health system.

“This did not happen by chance – it is the result of a whole-of-government strong political commitment to upgrade our country’s cooperation with WHO,” said Dr Xanthos.

MEREDITH HORNE

Medical students BreatheLife into conversation about sustainability

THE Australian Medical Students’ Association (AMSA), the peak representative body for Australia’s 17 000 medical students, is calling on individuals to increase their use of active transport to decrease air pollution and improve their health.

AMSA has joined the global BreatheLife campaign, led by the World Health Organization (WHO), together with the United Nations (UN) Environment and the Climate & Clean Air Coalition (CCAC), to mobilise individuals to protect our health and planet from the effects of air pollution.

AMSA supports the BreatheLife campaign because it directly relates to health. It links how the choices we make in travel every day directly affect our health, as well as the health of those around us.

“As individuals, we must recognise active transport can be an effective way to support our mental and physical health, as well as other people’s health, and the environment,” AMSA President, Alex Farrell, said.

This week, sustainability experts have warned of the urgent need to plan community spaces, taking into account public transport, parks, and cycling and walking infrastructure, as Australia’s growing population moves towards higher-density living.

“The WHO has found that air pollution is at unsafe levels in cities like Melbourne, Canberra, and Hobart – a fact that really drives home the need to address this as a major public health issue,” said Georgia Behrens, AMSA Code Green Co-Coordinator.

“As future doctors, we know that reducing the incidence of cardiovascular and respiratory diseases caused by air pollution could save hundreds of Australian lives every year, as well as bringing massive savings to the health budget.”

This July, using the hashtag #MoveMindfully, medical students from around Australia are encouraging their peers and the wider community to walk, bike, or take public transport to reduce air pollution, combat a sedentary lifestyle and enjoy the outdoors.

AMSA has thrown its support behind the movement as part of Activ8, AMSA’s eight-month mental health campaign running from March to October. Constructed around eight pillars of wellbeing that underpin mental health, including physical activity, food, sleep and sustainable environments, Activ8 aims to raise awareness and engage medical students in maintaining their own mental wellbeing.

AMSA Code Green, and AMSA Healthy Communities have also joined the campaign, as it focuses on encouraging sustainable travel, not only for students’ mental health, but also for promoting health across communities and supporting the environment. Both are AMSA Global Health Projects – AMSA Code Green focuses on the health impacts of climate change while AMSA Healthy Communities focuses on the control of noncommunicable diseases.

Press Club speech calls for better health policy decisions

AMA President Dr Tony Bartone has used an address to the National Press Club to salute Australia’s general practitioners, and to call for significant reform of primary care.

In his first major speech since being elected in May, Dr Bartone said the challenge of transforming general practice was severely underestimated by the nation’s policy makers.

He said the AMA has a plan, but it is one which will require upfront and meaningful new investment, in anticipation of long-term savings in downstream health costs.

Delivering the nationally televised address during Family Doctor Week in July, Dr Bartone said his overarching concern as a GP himself has always been the patient journey and ensuring that people get the right care at the right time in the right place by the right practitioner.

“The priorities for me are always universal access to care, and affordability,” he said.

“GPs of Australia, I salute you. We all salute you. Your hard work and dedication is highly valued. The AMA will always support you and promote you.”

But he described there being “something really crook” about how GPs have been treated by successive Governments.

“They have paid lip service to the critical role GPs play in our health system, often borne out of ignorance and often in a misguided attempt to control costs,” Dr Bartone said.

“General practice has been the target of continual funding cuts over many years. These cuts have systematically eaten away at the capacity of general practice to deliver the highest quality care for our patients. They threaten the viability of many practices.”

The AMA President said Australia has seen too many poor decisions and mistakes in health policy.

General practice must be put front and centre in future health policy development.

“Despite the Government’s best intentions – and lots of goodwill within the profession – the Health Care Homes trial and implementation failed to win the support of GPs or patients,” Dr Bartone said.

“Instead of real investment, the trial largely shifted existing buckets of money around. It has fallen well short of its practice enrolment targets, and it looks like only a small fraction of the targeted 65,000 patients will sign up.

“But general practice still needs transformation and rejuvenation to meet growing patient demand and to keep GPs working in general practice.”

Dr Bartone outlined the AMA’s plan for general practice, which included in the short term: 

  • significant changes to chronic disease funding, including a process that strengthens the relationship between a patient and their usual GP, and encourages continuity of care;
  • cutting the bureaucracy that makes it difficult for GPs to refer patients to allied health services;
  • formal recognition in GP funding arrangements of the significant non-face-to-face workload involved in caring for patients with complex and chronic disease;
  • additional funding to support enhanced care coordination for those patients with chronic disease who are at risk of unplanned hospital admission – a similar model to the Coordinated Veterans Care Program funded by the Department of Veterans Affairs;
  • a properly funded Quality Improvement Incentive under the Practice Incentive Program – the PIP;
  • changes to Medicare that improve access to after-hours GP care through a patient’s usual general practice;
  • support for patients with chronic wounds to access best practice wound care through their general practice;
  • better access to GP care for patients in residential aged care; and
  • annual indexation of current block funding streams that have not changed for many years – including those that provide funding to support the employment of nursing and allied health professionals in general practice.

“In the longer term, we need to look at moving to a more blended model of funding for general practice,” he said.

“While retaining our proven fee-for-service model at its core, the new funding model must have an increased emphasis on other funding streams, which are designed to support a high performing primary care system.

“This will allow for increasing the capability and improving the infrastructure supporting general practice to allow it to become the real engine room of our health system.

“It is about scaling up our GP-led patient-centred multidisciplinary practice teams to better provide the envelope of health care around the patient in their journey through the health system.”

On public hospitals, Dr Bartone said a better plan was needed.

Instead of helping the hospitals improve safety and quality, Governments decided to financially punish hospitals for poor safety events.

“There is no evidence to show that financial penalties work,” he said.

“Public hospitals are a critical part of our health system. They are highly visible. They are greatly loved institutions in the community. They are vote changers.

“The doctors, nurses, and other staff who work in our public hospitals are some of the most skilled in the world…

“Despite their importance, and despite our reliance on our hospitals to save lives and improve quality of life, they have been chronically underfunded for too long.

“Between 2010-11 and 2015-16, average annual real growth in Federal Government recurrent funding for public hospitals has been virtually stagnant – a mere 2.8 per cent.

“The AMA welcomes that, between 2014-15 and 2015-16, the Federal Government boosted its recurrent public hospital expenditure by 8.4 per cent.

“But a one-off modest boost from a very low base is not enough.” 

Dr Bartone called on the major political parties to boost funding for public hospitals beyond that which is outlined in the next agreement.

There must be a plan to lift public hospitals out of their current funding crisis, which is putting doctors and patients at risk.

And Governments must stop penalising hospitals for adverse patient safety events, he said.

The wide-ranging Press Club address also went to aged care, with Dr Bartone describing it as “one of the highest profile segments of the health system – but for all the wrong reasons”.

He added that aged care was now emerging as an area in need of significant reform as the population ages and lives longer.

“An increase in funding for GP visits to aged care facilities would result in many savings, including from reduced ambulance transfers to hospital emergency departments,” he said.

“Changes to after-hours care remuneration must consider services that are currently provided under ‘urgent’ item numbers to patients in aged care facilities.

“We also need to ensure that the critical role that nurses play in caring for older Australians is recognised in those facilities.”

On private health insurance, the President said affordability meant very little without value, and that the Government knows the issue is at crisis point.

“Australians want reasonable and simple things from their insurance,” he said.

“They want coverage. They want a choice of the practitioner, and a choice of the hospital. They want treatment when they need it.

“We can’t have patients finding out they aren’t covered after the event, or when they require treatment and it’s all too late…

“Australians do not support a US-style managed care health system. Neither does the AMA. One area we are disappointed with in the recent announcements is pregnancy cover.

“It does not make sense to us, as clinicians, to have pregnancy cover in a higher level of insurance only.

“Many pregnancies are unplanned – meaning people are caught out underinsured when pregnancy is restricted to high-end policies.

“Pregnancy is a major reason that the younger population considers taking up private health insurance.

“They are less likely to be able to afford the higher-level policies. We need to make sure it is within reach.

“And having female reproductive services at a different level to pregnancy coverage is, to us, problematic, and will leave a lot of people caught out.

“There will be much more to talk about as the private health reforms are finalised and bedded down.”

 

Dr Bartone’s full address to the National Press Club of Australia can be found at: media/dr-tony-bartone-speech-national-press-club

 

Whatever it takes to clear up ambiguity over My Health Record privacy concerns

During the Q&A segment of his National Press Club address, AMA President Dr Tony Bartone said promised a face-to-face meeting with Health Minister Greg Hunt to gain assurances the Government will take further steps to ensure the privacy and security of the My Health Record.

Dr Bartone said there had been a groundswell of concern from AMA members, the broader medical profession, and the public about the 2012 legislation framing the My Health Record, particularly Section 70, which deals with the disclosure of health information for law enforcement purposes.

“The priority of the AMA at all times has been to support the My Health Record, and its precursors, for the important clinical benefits it will deliver to doctors, patients, and the health system,” Dr Bartone said.

“The AMA has always been protective and vigilant about the privacy of the doctor-patient relationship, and this should not be affected by the My Health Record.

“Given the public debate, I support calls for the Government to provide solid guarantees about the long-term security of the privacy of the My Health Record.

“I will do whatever it takes to ensure that the security concerns are raised and cleared up as a matter of urgency.

“This may involve examining the legislation.”

Mr Hunt contacted Dr Bartone directly after the Press Club to set up a meeting to discuss all aspects of the rollout of the My Health Record.

CHRIS JOHNSON

 

 

Getting the right My Health Record

AMA PRESIDENT DR TONY BARTONE

For well over a decade, successive Australian governments have worked to make an electronic health record a reality.

The AMA and the medical profession have been strong supporters of such a record. It promises greater efficiencies in recording, storing, and sharing vital health information. But it must be the right record – one that combines a safe, single record of a patient’s health information with the necessary privacy and security systems in place.

There is a lot of misinformation around now, and people concerned fears of hacking and third-party access to files, but we continue to be assured that the current My Health Record model offers all the relevant protection.

The finite benefits far outweigh the possible concerns. It is a great asset for the health system.

If health care was simple and predictable, and if a patient only ever needed clinical treatment from a single, regular clinician, we would not need a My Health Record at all. The patient’s doctor would have all the patient’s clinical information in their own clinical software on the desktop.

But patients’ lives are more dynamic and unpredictable than this. Emergencies happen. Each patient will be seen by many different doctors for different reasons at different times, and will be treated in multiple settings.

As well as their GP, patients might be treated in hospital, see specialists and allied health professionals, be referred by different doctors to different pathology labs and diagnostic imaging providers. These realities mean that each doctor who treats the patient doesn’t currently have a clear overview of the range of treatments the patient has received.

The My Health Record will help connect care across the health system and start to address the treatment fragmentation.

The multiple doctors and allied health professions who all treat the same patient at various points in time will be able to access a summary of relevant patient clinical data at the time of treatment – irrespective of the clinician’s specialty or physical location in Australia. The result will be safer, faster, and more efficient health care.

We would see a reduction in things like medical harm due to anaphylaxis because clinicians other than the patient’s usual doctor can access the patient’s records quickly and efficiently no matter the location.

The electronic record can save lives. A Brisbane GP recently told a Senate inquiry how the earlier version of the My Health Record saved the life of one of his patients. 

He said that the hospital was able to access the information that was in that electronic record and made the decision not give the diabetic patient, who was in a coma, the usual antibiotic that would have been administered for sepsis.  This person had a severe anaphylactic allergy to that antibiotic and, if it had been given, would have been killed. That is a powerful example of the value of an electronic health record.

The electronic record will also go a long way to addressing the intractable problem of delayed or non-existent handovers of admitted patients to their GPs on discharge.

It will reduce medical harm due to polypharmacy, which is a big issue. There are an estimated 230,000 hospital admissions costing over $1.2 billion annually due to medicine misadventure in Australia.

My Health Record should also deliver increased efficiencies and reduced waste. Treasury estimates suggest savings of around $123 million by 2020-21 by eliminating avoidable duplicated pathology tests, diagnostic images, and averted medical misadventures.

We have come a long way over the last decade. There has been considerable consultation and trialling to get things right – and safe. We must push ahead with this My Health Record. 

This article was first published in Fairfax newspapers on 24 July 2018

Your patients’ health in their hands

Information for AMA Members from the Australian Digital Health Agency about My Health Record.

By Professor Meredith Makeham

Australians are being offered an important choice over the next three months about how they want to interact with their health information.

By the end of 2018, all Australians will have a My Health Record created for them, unless they choose not to have one.

The decision, importantly, is theirs to make after considering the benefits of having immediate online access to their health and care data, and being able to share it with their clinicians.

They will have access to information such as their medicines and allergies, hospital and GP summaries, investigation reports and advance care plans which could not only save their life in an emergency but also help their clinicians find vital information more quickly so that they can make safer health care decisions.

Trusted health care providers – GPs, specialists, pharmacists and others – are likely to find their patients want to talk to them about their decision. The My Health Record system is here to support better, safer care – not to replace current clinical record keeping systems or professional communication. Neither will it replace the patient-doctor relationship and clinical judgement. It is simply a secure online repository of health data and information that wouldn’t be accessible otherwise.

The data flows into the record from securely connected clinical information systems in hospitals, general practices, pharmacies, specialists’ rooms, and pathology and radiology providers. It also provides access to Medicare Benefits Schedule (MBS) and Pharmaceutical Benefits Scheme (PBS) data, the Australian Immunisation register and the Australian Organ Donor registry.

People understandably want reassurance that the Australian Digital Health Agency (the Agency) holds the privacy and security of their health information as its first priority. The system’s security has not been breached in its six years of operation. There is no complacency however – My Health Record system security operates to the highest standards, working with the Australian Cyber Security Centre and others. It is under constant surveillance and threat testing.

The legislated privacy controls are world-leading and easily accessed on the consumer portal. They include features such as a record access control – similar to a PIN – that a person can apply to their entire record so it can’t be viewed unless shared with their clinician. In an emergency, the legislation allows a clinician to ‘break glass’ and see vital medicines and allergy information. However, all instances of this are audited and people can choose to receive a text or email informing them if this happens.

The steps required for a healthcare practitioner to view a My Health Record require a number of security authentications to take place. For a provider to access the My Health Record via their clinical information system, they must be a registered health care provider – for example, registered with the Australian Health Practitioner Regulation Agency. They must also have a valid provider identifier and work in an organisation with a valid organisational identifier.

Software must be conformant, with a secure and encrypted connection to the My Health Record system. In addition, the patient must have a record on the provider’s clinical information system as a patient of the practice.

The Agency has not and will not release documents without a court/coronial or similar order. No documents have been released in the past six years and no other Government agencies have direct access to the My Health Record system.

We know 230,000 hospital admissions occur every year as a result of medication misadventure, costing the Australian taxpayer $1.2 billion annually. Many of these could be avoided if people and their clinicians had better access to vital medicines and allergy information.

The ‘Medicines View’ is a recent addition to My Health Record. It provides a consolidated summary of the most recent medicines information from notes entered by GPs, hospitals, pharmacies and consumers.

Over the past 12 months, the system has enriched its clinical content. Public and private pathology and imaging providers are now connecting and a vast increase in connected pharmacy systems as well as hospitals has occurred. This will accelerate the realisation of benefits as clinicians find they can access a more comprehensive source of information within the My Health Record system.

This month, a national communication plan was launched to ensure Australians are well informed when making their decision. Almost 20,000 My Health Record education kits were distributed to GPs, community pharmacies, aboriginal health services, post offices and public and private hospitals.

Our role as health care providers is to be our patients’ advocate, to support them in making the decisions and choices that will lead to better health outcomes and ensure that they have access to safe and effective care. My Health Record isn’t here to solve all of our problems, but it is an important step forward in our ability to deliver a safer and better-connected healthcare system.

Clinical Professor Meredith Makeham is Chief Medical Adviser of the Australian Digital Health Agency.